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ICD Patient and Family Heart Support Group
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WELCOME TO OUR WEB SITE
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"Giving Support to Patients, Their Families and Carers"
COPYRIGHT
Unless otherwise stated, the Copyright of all the material on this web site is owned by the ICD Patient and Family Heart Support Group of North Staffordshire.
Please note:
This heart and family logo must not be downloaded or used without the prior written permission of the ICD Patient and Family Heart Support Group of North Staffordshire.
Mr James Lyons, Chairman
Dr Adrian Morley-Davies, Hon Patron,Consultant Cardiologist
Mrs Brenda Lyons, Secretary/Treasurer
Our Honorary Members are Councillor Clive and Mrs Christine Brian, ex-Lord and Lady Mayoress of the City of Stoke on Trent.
They are quoted as saying..
"We are both very proud to be associated with such a valuable Heart Support Group based in Stoke on Trent"
Committee Members:
Mr Doug Wood - Signal 2
Mr R Inskip - Hospital Liaison Officer
Members of the following
The Medical Technology Group, London (Enhancing Patient Access to Medical Technology)
The Community Empowerment Network, North Staffordshire
AFFILIATED TO
THE BRITISH HEART FOUNDATION
NOTE:- Although Affiliation shows on this site , our Organisation remains totally autonomous from any other Heart Support Group in the UK.
We are not supported financially by any other Heart Support organisation and all funds are raised by the ICD Patient and Family Heart Support Group or their nominated fundraisers to benefit ICD Patients, their Families and Carers.
THE ONLY INFORMATION/ADVICE WE GIVE IS OF A NON-MEDICAL NATURE, EG TELEPHONE HELPLINE WITH SOMEONE TO TALK TO ABOUT LIVING LIFE WITH AN ICD AND ALSO HOSPITAL VISITS UPON REQUEST.
ALSO PRACTICAL SOLUTIONS LIKE DVLA RULES AND TRAVEL INSURANCE HOME AND ABROAD ETC.
FOR ANY MEDICAL ISSUES YOU MIGHT HAVE, WE SUGGEST YOU CONTACT YOUR GP OR CARDIOLOGIST.
AIMS
We give support, advice and reassurance to Heart Patients with ICD's fitted and also to their Families and Carers in North Staffordshire and throughout the UK. Please visit our Web Pages for more information.
Monthly Newsletter – Giving valuable non-medical information about living with a defibrillator, which covers driving, insurance information for both holidays and travel, safety within the home, forthcoming fund-raising and social events, disability law information, contact names and telephone numbers of a range of services, including disability resources available.
Telephone Counselling and Chat Lines – Training to include counselling skills for non-medical committee members, who are in direct contact with patients and their families. Sharing experiences with other ICD patients, either face to face or on the telephone.
Hospital Visits to Patients upon request by them —Liaison with consultants/ward staff at the University Hospital of North Staffordshire regarding hospital visits to patients awaiting implantation and also to give support after the operation and on their return home.
Social Gatherings/Fund Raising Events
For Patients, their Families and Carers
OBJECTIVES
To continue to keep in close liaison with all ICD Manufacturers in the UK. The Companies have always offered their support and information about their devices, which they manufacture. We then pass on valuable information to patients and their families.
Medtronic has also offered to provide a speaker at any Meetings/social gatherings that we may have.
To continue to pursue close liaison with the Cardiac Management Committee of the University Hospital of North Staffordshire in order to promote the benefits of our Support Group to Patients and their Families.
This is with a view to developing closer working relationships with the Cardiac Wards in order to make patient contact before and after implantation.
Recruiting Patients/Families to our Group in order to raise awareness of the benefits to them of our Support Group in order to increase the numbers of our members, so that a better service may be maintained.
CPR Training - To offer basic life support training to patients’ families on request.
To continue to provide up to date Information on Defibrillators
To make more patients and their families aware of what to do when a defibrillator delivers a therapy, i.e. when to call a doctor, ambulance and to record the events leading up to the shock. Information on ‘keeping calm’ until expert help arrives. See our Telephone Helpline page for ICD patients only.
To recruit more Volunteers for Telephone Helpline and Hospital Visits
Counselling Skills Training Courses for both Hospital Visitors and Telephone Helpline Volunteers
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